For Families and Caregivers – The News You Need This Week (3/28/12)

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Home Health Providers: Finding the Right Fit

No matter what the caregiver’s credentials, however, be prepared to spend some initial time training and teaching. After all, no one knows your child like you do. No one else is as informed about your child’s needs as you are, or has your experience caring for your child.

 How Merrill Lynch Helps Special Needs Families

For more on Special Needs Planning, please see my interview with Doug Baker.

To aid families through the initial process of starting a Special Needs Trust, Merrill recently launched a Special Needs Calculator, which helps parents project how much they will need, at retirement, to provide for their child, based on certain financial information and the child’s projected life expectancy. The calculator can take into account expenses such as a child’s monthly health care, housing, special education and transportation expenses, as well as his or her projected employment income, and state or federal government benefits.

The Financial Needs of Children with Autism

This applies to all Special Needs Children.

The city water facility was able to inform him that there could be a medical flag put onto the account, so long as a doctor signed a form.It doesn’t mean that the bill doesn’t get paid (as the money would still be due) – it just means that the city would take an extra step and work with you further before any action on turning the water off would be taken.

 Effective IEP Teams: Reality or Impossible Dream?

I wish I had this information when Matthew was little! For more help with IEP’s and Special Education, visit Special Education Advisor.

What happens at IEP meetings when staff and parents come together to develop an effective plan for a child with disabilities? It is basically the same set of people. What is different about an effective team?

Game-changing technology offers everyone hope

Technology – giving voice when there was only silence.

…But I’m waiting for this day. I’m waiting with all of the bad and good that can come with self-expression – even hopeful for it. I’m hopeful within my family’s world. And, I’m even hopeful for our great, wide world, too.

Explaining Death

A few years ago, a friend of Matthew’s died suddenly. He was the person who taught my Son with Autism how to have a friend. We had no warning; no time to prepare Matthew. To this day, I don’t think Matthew understands what happened. All I could do was to try to make sure that Matthew didn’t think his friend just didn’t like him anymore.

I know this will be difficult, but death and funerals are a part of life and living. I think the more the children are included in big family events and shown how to care, share, and show respect, the better they will be prepared for life. That does not mean that I cannot do a little preparation.

Generation Next Question

I thought that those of you with Special Needs Young Adults might appreciate this…

Some of those things that I should be familiar with as a parent of a typical 17-year-old may well slap me in the face as my son starts to integrate with his neurotypical peers. Or maybe it will be reality that slaps me in the face if Cameron struggles mightily in the general population setting. We’ll never know unless we try. Either that, or I’ve got to really find that crystal ball.

Please let us know your thoughts or questions on these articles in the Comments Section or privately via the Contact Page.

Autism/PDD – The News You Need This Week

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Autism: The Musical

“Autism: The Musical” has received two Primetime Emmys (for Outstanding Nonfiction Special and Outstanding Picture Editing for Nonfiction Programming) and numerous other accolades as well. It is now available for purchase and rental on DVD. Recently, Autism After 16 spoke with the film’s director, Tricia Regan.

People VS. Things by Mika Chabanik

Well, for me, this isn’t exactly the truth. Let me tell you exactly how the statement, “I am more drawn to things than people”, affects me and maybe it will help you with some of your fears.

Justice Sought for Autistic Girl Seized by Canadian Government

On June 16, 2011, Ayn Van Dyk, a ten-year-old girl with autism, was playing in her back yard. Derek Hoare briefly lost sight of his daughter after she scaled a 6-foot-high fence. Police were notified and after a several-hour search, Ayn was found playing safely in a nearby neighbor’s yard. If the story ended there, this would’ve been a happy ending to a terrifying ordeal. However, unbeknownst to Derek at the time, his nightmare had just begun.

Autism: Curse or Opportunity?

I used to think it was my job just to heal my son and recover him from autism. I now know he was also brought here to HEAL ME.

Autism on Public Assistance

In an effort to help our families afford the treatments that can help their children, TACA introduced the very popular article series “Autism-On-A-Budget,” but with the worsening economy, we’ve been getting many more requests for help from families who are on, or considering, public assistance programs like Medicaid, Food Stamps and other programs offered by state and federal agencies.

If you have found any great resources or stories, please share them in the Comments Section.

Self-Care for Mom – An Interview with Doreen Fulton of IEP for Mom

Today’s interview is with Doreen Fulton, creator of the Finally, an IEP for Mom Experience! program designed to help Moms develop their own Individualized Empowerment Plan.

Doreen and I talked about how Moms can take care of themselves and their Families and why that is important for every ones sake.

She shared:

  • How you can help yourself and your child at the same time;
  • Simple strategies you can use to bounce back when you are down for the count
  • What you can do today to sleep easier tonight and wake up refreshed and ready to tackle the day ahead!

Watch the interview here:

Or if you prefer audio only:

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About Doreen:

Doreen coaches Moms and Educators and specializes in giving voice to Young Adults with Special Needs. She is passionate about giving voice to unspoken dreams and empowering Moms and Educators like you to think and act in new ways that give you stamina, strength and resilience, so that you can be the role models that you wish to be. She knows from personal experience how isolated, forgotten and unheard you can feel while advocating for you Special Needs Familiy Member.

Learn more about Doreen and those who want to support you here:

Connect with Doreen on Facebook here.Doreen Fulton - IEP for Mom

IEP for Mom - Discover How to Successfully Navigate Through the Desert of Special Needs into an Oasis of Hope and Support!

To connect with Doreen and learn more about her individual or group coaching programs, visit Believe in a Ray of Hope and get her free special report: “5 Keys to the Garden of Hope, Happiness and Empowerment for the Mom who is Overworked, Overwhelmed and Underappreciated!”

Click here to find more Interviews.

Do you know someone I should interview? Please let me know via our Contact page. Thanks!

Enjoy,

Sandra

P.S Click here to find more Interviews.

Matthew at the Park

What I learned from Doreen - Listen to find out what it is!