Autism/PDD – The News You Need This Week

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Here’s the news this week:

Dennis Debbaudt – The leading global voice on autism training for law enforcement and emergency responders on The Coffee Klatch

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Dennis Debbaudt is the leading global voice on autism training for law enforcement and emergency responders.

Special Needs Trusts: Estate Planning Is Crucial for Ensuring the Future of Your Autistic Child

A few weeks ago I spoke with Laura Hoffman-King about Conservatorships for Special Needs Adults. This article focuses on another legal and financial issue facing many families – Estate Planning when you don’t think you have an estate.

But for the majority of American families – those earning about $65,000 a year for a family of four – a special needs trust is crucial. These families typically have very little in tangible assets, second mortgages on their homes, and little to no savings (likely due to paying for costly therapies). But even though they not wealthy, their children aren’t used to relying on government assistance. And they often have life insurance (mostly term life insurance or employer provided), which may be valuable. Estate planning vehicles like special needs trusts can ensure that this life insurance will in fact be available to retain their child’s quality of life.

The Story of our Autism Service Dog Paula…

I’ve been reading a lot of stories about service dogs for people with Autism. I like this article because it explains how the process of getting a dog works as well as the realities of using one – the good and the not so good, but not really bad. Do you have a Service Dog for your Special Needs Family Member? Please comment and let us know how it is working for you.

Anyway, that the gist of what she does. It is not miraculous. It is not a cure. It is not perfect. But she is IMMENSELY helpful. My wife and I were NOT dog people growing up. And Paula has been a WONDERFUL addition to our family. She is our daughter.

Lip-Reading Discovery Could Aid Autism Diagnosis

It was long believed that babies learned to talk by listening. But new research suggests that youngsters lip-read, a development that could have implications for diagnosing autism earlier.

Study looks at how kids with autism spend their screen time

Nothing about this surprised me. I see it with Matthew daily. I mean, if you understand the diagnosis of Autism, then the conclusions this study draws seem logical, at least to me. Still, it’s an interesting article.

“We found a very high rate of use of solitary screen-based media such as video games and television with a markedly lower rate of use of social interactive media, including email,” Shattuck says.

Durham University lead research in the battle against autism

Matthew doesn’t talk things through in his head, he thinks “out loud”. Even so, this articles has some interesting ideas.

A study led by Durham University found that if children with the condition were encouraged to “talk things through in their head” when solving complex everyday tasks then it would help improve their communication skills.

Autism roundtable, Part I: Angry parents, disability rights, and living in a neurotypical world

Fascinating article with much “food for thought”.

A Good Influence

Share this with your child’s mainstream classroom teachers so they can share it with other parents.

Making friends at school can be hard for any child, but it is especially difficult for children with autism. Most parents and clinicians focus on teaching these children how to navigate social rules. But another effective way to help students with autism in mainstream classroomsmay be to train their classmates in how to engage with them, suggests one new study.

If you have found any great resources or stories, please share them in the Comments Section.

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Autism/PDD – The News You Need This Week

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This week I want to focus on the conversations surrounding the proposed DSM-V changes for Autism diagnoses. There is a lot of panic and misunderstanding surrounding these changes and I think it is very important to explore this topic if you have a Family Member with an Autism related diagnosis.

For example I originally thought it would not affect Matthew because

1. He has already been diagnosed

  • Not true because they are periodically re-evaluated and the new criteria will be used.

2. He is not Asperger’s; he is diagnosed as classic Autism

  • When he is re-evaluated he could be moved into Social Communication Disorder and I think that would mean he would lose some very important services like job support.

Much still to research but here are the best resources I have found so far:

New Definition of Autism Will Exclude Many, Study Suggests

This is the article that started me to wonder about how this might affect Matthew.

DSM-5: Diagnostic and Statistical Manual of Mental Disorders – Facebook page

This is an excellent place to see the latest information regarding the proposed changes.

The Diagnostic and Statistical Manual of Mental Disorders, published by the American Psychiatric Association, contains descriptions, symptoms, and other criteria for diagnosing mental disorders.

The DSM-V and Asperger’s Syndrome and PDD

Two excellent interviews from The Coffee Klatch:

Join guests Dr Temple Grandin, Rebecca Banks and Diane Kennedy authors of  ”Bright Not Broken – Gifted Kids ADHD and Autism” as they discuss the upcoming changes to the DSMV and how it could affect children and adults on the spectrum.

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Dr Allen Frances – The DSM V

Dr Allen Frances Chair of the DSM-IV Task Force returns to discuss the confusion and concerns over the soon to be released DSMV.  How will the changes impact your child?  What do the changes mean for your childs accommodations?  Why are so many additions and revisions causing so much controversy?

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DSM 5 Autism Criteria: Clarifying Impact, Taking Action

Interview with Dr. Gil Tippy, Clinical Director of The Rebecca School, Manhattan, New York

The Thinking Person’s Guide to Autism has a number of other articles on the DSM-V so you might want to explore their sight further.

Letter From Michael John Carley on the DSM-V Revisions 

The letters are tremendous, and the calls are having an impact. Please keep it up…letters and phone calls. And if this will really effect you; if your child is at risk of losing their education funding, if you or a loved one are at risk of losing housing, health, or employment services; or if you’re simply a fellow spectrumite who worries about having your behavioral differences lumped back into the category of personal defect rather than wiring…

Panic Over DSM-5 Changes in Autism Diagnosis

Landon Bryce makes some very interesting counter points to some of the concerns of opponents to the changes on thAutCast.com

Proposed DSM-5 Changes & Autism: Future Implications

Elise Ronan has written what I think is one of the most important articles on the potential impact of the changes. It also links to other articles on Special Education Advisor regarding the proposed changes.

This new definition, which has the possibility of undiagnosing the overwhelming majority of those who have been dxed in the last twenty years, means that society has no obligation to help you or your child, no matter how much you pay in taxes, no matter how good a citizen you happen to be, no matter how many years you served in the armed forces. Your insurance company does not have to either pay for services or reimburse you. The state, or federal government, does not have to either pay for services or provide your child with access to adult services. There was a terrible dirth of adult services for autistics before and the ones that were out there serviced so very few. Now the programs will have no need to grow, change and progress.

If you have found any great resources or stories, please share them in the Comments Section.

Help make The Village Your Village but sharing your thoughts, ideas and suggestions in this short survey. It’ll only take a few minutes but I appreciate your time very much.

Autism/PDD – The News You Need This Week (1/16/12)

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Autism Life Success System: Understanding Assessments

This is an excellent interview with Dr. Lee Wilkinson, a school psychologist and author of the award winning book, “A Best Practice Guide to Assessment and Intervention for Autism and Aspergers Syndrome”

A Diagnosis of Autism: Making Adjustments to Manage Feelings of Loss and Grief

If your child has just been diagnosed or you know someone just starting this process, Connie Hammer’s article offers some helpful perspective.

Proposed DSM 5 Changes and Autism: What Parents & Advocates Need to Know

An excellent, easy-to-understand overview.

Registries of autistic children arm police with information

A local Mom suggested this a few years ago and I think it could be helpful. What are your thoughts?

Should Teens With Autism Drive?

This is an interesting question and must be decided on a case-by-case basis. For example, Matthew is capable of learning how to drive but he could not handle driving.

Lego therapy helps teen in coping with Asperger’s syndrome

Interesting look at why Lego’s help.

If you have found any great resources or stories, please share them in the Comments Section.

Help make The Village Your Village but sharing your thoughts, ideas and suggestions in this short survey. It’ll only take a few minutes but I appreciate your time very much.