For Families and Caregivers – The News You Need This Week (3/28/12)

For previous articles, please click here.

If you find the information, resources and support here on Our Special Families Village Helpful, please consider supporting our efforts when you shop your favorite online retailers through iBakeSale.com. Thank you.

 

Home Health Providers: Finding the Right Fit

No matter what the caregiver’s credentials, however, be prepared to spend some initial time training and teaching. After all, no one knows your child like you do. No one else is as informed about your child’s needs as you are, or has your experience caring for your child.

 How Merrill Lynch Helps Special Needs Families

For more on Special Needs Planning, please see my interview with Doug Baker.

To aid families through the initial process of starting a Special Needs Trust, Merrill recently launched a Special Needs Calculator, which helps parents project how much they will need, at retirement, to provide for their child, based on certain financial information and the child’s projected life expectancy. The calculator can take into account expenses such as a child’s monthly health care, housing, special education and transportation expenses, as well as his or her projected employment income, and state or federal government benefits.

The Financial Needs of Children with Autism

This applies to all Special Needs Children.

The city water facility was able to inform him that there could be a medical flag put onto the account, so long as a doctor signed a form.It doesn’t mean that the bill doesn’t get paid (as the money would still be due) – it just means that the city would take an extra step and work with you further before any action on turning the water off would be taken.

 Effective IEP Teams: Reality or Impossible Dream?

I wish I had this information when Matthew was little! For more help with IEP’s and Special Education, visit Special Education Advisor.

What happens at IEP meetings when staff and parents come together to develop an effective plan for a child with disabilities? It is basically the same set of people. What is different about an effective team?

Game-changing technology offers everyone hope

Technology – giving voice when there was only silence.

…But I’m waiting for this day. I’m waiting with all of the bad and good that can come with self-expression – even hopeful for it. I’m hopeful within my family’s world. And, I’m even hopeful for our great, wide world, too.

Explaining Death

A few years ago, a friend of Matthew’s died suddenly. He was the person who taught my Son with Autism how to have a friend. We had no warning; no time to prepare Matthew. To this day, I don’t think Matthew understands what happened. All I could do was to try to make sure that Matthew didn’t think his friend just didn’t like him anymore.

I know this will be difficult, but death and funerals are a part of life and living. I think the more the children are included in big family events and shown how to care, share, and show respect, the better they will be prepared for life. That does not mean that I cannot do a little preparation.

Generation Next Question

I thought that those of you with Special Needs Young Adults might appreciate this…

Some of those things that I should be familiar with as a parent of a typical 17-year-old may well slap me in the face as my son starts to integrate with his neurotypical peers. Or maybe it will be reality that slaps me in the face if Cameron struggles mightily in the general population setting. We’ll never know unless we try. Either that, or I’ve got to really find that crystal ball.

Please let us know your thoughts or questions on these articles in the Comments Section or privately via the Contact Page.

For Families and Caregivers – The News You Need This Week (3/21/12)

For previous articles, please click here.

If you find the information, resources and support here on Our Special Families Village Helpful, please consider supporting our efforts when you shop your favorite online retailers through iBakeSale.com. Thank you.

Special treatment for kids with special needs (and the fine line we walk as their parents)

One of the things I most desire for Max is for other kids and adults to look past his disabilities and see the amazing child that he is. I’d like them to treat Max as a kid—someone to play with, joke around with, enjoy activities with. More often than not, kids are wary and adults treat him with kid gloves. And so, when I can, I bridge the gap and forge connections and get people interacting with Max.

How To Help Your Child With Homework

Many students, especially those with learning disabilities, have difficulty planning for, benefiting from, and completing homework assignments. However, there are strategies that can be implemented which can make homework a positive and effective tool to help optimize your child’s learning and help her to achieve academic success. The following are key areas to target when supporting your child’s homework habits:

How Parents Can Help Siblings of Kids with Special Needs

Note: For more on this, please check out my interview with Caroline McGraw of A Wish Come Clear.

Parents of kids with special needs tend to be worriers. Mainly because they have more to worry about than other parent do. Many worry not only about their kids with special needs who require extra time and parenting energy, but also about the siblings who get the short end of the attention stick more than mom and dad like.

Billions Unleashed To Expand Community Living

No one should have to live in an institution or nursing home if they can live in their homes and communities with the right mix of affordable supports,” said Cindy Mann, who oversees the federal Medicaid program. “These new grants will help states like New Hampshire give people with long-term care needs the choice about how and where to live their lives.”

Bridging Home-School Communications: Helping Parents Begin Conversations with Teachers

A meaningful education for children begins and ends with open, honest communication between home and school. Without a positive and comfortable relationship, solid and meaningful plans for a child’s education cannot move forward. This is particularly true when the child in question is one with ”special,” or as I like to call them, ”extra” needs.

Building a Transition Plan

Transition planning, in its most basic sense, means figuring out what you want to do in the next stage of your life, gaining the skills and resources you need to do it, and then doing it. In theory, everyone—autistic or not—should engage in a transition planning process, not only during high school but also during the years preceding every life change.

If you have found any great resources or stories, please share them in the Comments Section.

Autism/PDD – The News You Need This Week

For Previous Articles, Please Click Here.

If you find the information, resources and support here on Our Special Families Village Helpful, please consider supporting our efforts when you shop your favorite online retailers through iBakeSale.com. Thank you.

 

Autism: The Musical

“Autism: The Musical” has received two Primetime Emmys (for Outstanding Nonfiction Special and Outstanding Picture Editing for Nonfiction Programming) and numerous other accolades as well. It is now available for purchase and rental on DVD. Recently, Autism After 16 spoke with the film’s director, Tricia Regan.

People VS. Things by Mika Chabanik

Well, for me, this isn’t exactly the truth. Let me tell you exactly how the statement, “I am more drawn to things than people”, affects me and maybe it will help you with some of your fears.

Justice Sought for Autistic Girl Seized by Canadian Government

On June 16, 2011, Ayn Van Dyk, a ten-year-old girl with autism, was playing in her back yard. Derek Hoare briefly lost sight of his daughter after she scaled a 6-foot-high fence. Police were notified and after a several-hour search, Ayn was found playing safely in a nearby neighbor’s yard. If the story ended there, this would’ve been a happy ending to a terrifying ordeal. However, unbeknownst to Derek at the time, his nightmare had just begun.

Autism: Curse or Opportunity?

I used to think it was my job just to heal my son and recover him from autism. I now know he was also brought here to HEAL ME.

Autism on Public Assistance

In an effort to help our families afford the treatments that can help their children, TACA introduced the very popular article series “Autism-On-A-Budget,” but with the worsening economy, we’ve been getting many more requests for help from families who are on, or considering, public assistance programs like Medicaid, Food Stamps and other programs offered by state and federal agencies.

If you have found any great resources or stories, please share them in the Comments Section.