From the Archives – Inspired by Carly’s Voice

Technical Difficulties graphicDue to some scheduling snafu’s and a technical glitch, I don’t have an interview for you this week. I do however, want to share three interviews from the archives.

I’m listening to the audio version of Carly’s Voice, an absolutely stunning book about a young woman with Autism. Technology allowed her to share herself with us and I think we are only beginning to see the changes her words will bring.

Listening to this book reminds me of three interviews I have done that I want share again, in case you missed them.

Provider Search DirectoryOne is with Tyler Burke of Provider Search Directory. Tyler’s service helps families connect with people and services and as Carly’ story demonstrates, finding the right fit is so incredibly important. Listen here.

The second interview is with Dr. Mueller of Stimulus Publications. Dr. Mueller and I talk about what ABA, Applied Behavior Analysis, is and how to work with your child’s IEP Team to help your child. I think ABA had a significant impact on Carly and allowed her the glimpse the possible. Listen here.

MaximumPotentialKids.comThe third interview is with Garrett Butch of Maximum Potential Kids. Garrett and I talked about ABA from a parent’s point of view. Clearly ABA gave Carly’s parent’s hope and let them see the possibilities. Listen here.

Please let us know your thoughts and any questions you may have. You can just leave a comment or if you want to keep it private, go to out Contact Page and fill out the form.

Next week I will post an interview with an author who has a very unique way of helping other’s meet your child. Stay tuned!

Enjoy!

Sandra

P.S Click here to find more Interviews.

P.P.S Are you interested in being interviewed or being a guest writer? Contact me here, please.

Autism/PDD – The News You Need This Week (3/12/12)

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Autism isn’t always obvious, but it’s always there

It’s hard to describe the feeling, as a dad, when people who mean well — and who you know mean well — look at you as if you’re some kind of bungling incompetent, who has jeopardized your child’s future by turning to the label-obsessed medical establishment instead of letting your kid be, well, himself.

Building a Transition Plan

Transition services are a coordinated set of activities that promote movement from school to such post-school activities as post-secondary education, vocational training, employment, adult services, independent living and community participation. They must be based on the individual student’s needs, taking into account his or her preferences and interests. Transition services must include instruction, community experiences, and development of employment and other post school adult living objectives. If appropriate, daily living skills and functional vocational evaluation may also be included.

Acetaminophen and its Possible Connection to the Rise in Autism

Why is the autism rate in Cuba so much lower than in the US and is there a single environmental factor that is causing the rise in autism?” We couldn’t wait to find out! The following is a summary of what we learned…

 NBC’s Parenthood Explores Autism

Sarah astutely pointed out that students aren’t ever allowed to simply “not participate” in math class. This, of course, is true: if either boy had a math disability, the math lesson would be modified to allow their full participation at a level appropriate for them, and they would be expected to participate. The time wouldn’t simply be wasted. The boys wouldn’t simply be left to their own devices, literally.

10 Reasons not to Discuss Child Sexual Abuse

Jill has presented ten myths that prevent us from talking to our children about it. All children, especially those with an Autism Spectrum Disorder, need to be armed with the knowledge necessary to protect themselves so please read this post, read her book, then read her book to your child and start talking. An informed child is a safe child.

The Brain – The Troublesome Bloom of Autism

 At the time, Courchesne was investigating how children’s brains respond to new pieces of information. “I encountered a clinical psychologist who studied children with autism,” he says. “She told me, ‘Autistic children aren’t interested in novelty. They’re interested in routine.’ ” Yet the young man Courchesne met showed more range. At first he responded to Courchesne’s questions only with short answers, “but when I talked with him further, I discovered he had a tremendous wealth of knowledge,” the neuroscientist recalls. “He had calendar memory. He just wasn’t interested in being sociable.”

Parenting Adults With Autism 

With just a bit of tweaking, my son, and growing numbers like him, can truly be beneficial to our society in ways people have not even begun to consider. And the “trick” for me is finding someone to give them a chance.

What the UK High Court’s Ruling on John Walker-Smith Means and Doesn’t Mean

It’s important to be very clear about what this ruling means. Mr. Justice Mitting did not find that Professor Walker-Smith’s actions were medically necessary or ethical. The ruling does not exonerate Walker-Smith. That was not what the hearing was about. Mitting was only ruling on the conduct, the decision-making, of the GMC’s Fitness to Practice panel. More broadly, Mitting found aspects of the GMC’s procedures to be flawed.

What Do School Personnel Know about Autism? 

There is a critical need for more coordinated efforts among community and school professionals for the training of teachers in evidence-based instruction and behavioral management practices for children with ASD.

Special-needs restraint called means to safety

“Disability advocates like to say that somehow schools are conspiring to hurt children and they’r e using seclusion and restraints as a tool to do this. That is not the case,” said Pudelski, government-affairs manager at the Alexandria, Va.-based group. “No school administrator that we represent believes that these techniques should be used as a means of punishing students. It should never be commonplace.”

If you have found any great resources or stories, please share them in the Comments Section.

 

Down Syndrome – The News You Need This Week (3/6/12)

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Most of the news this past week and for a while, actually, has centered around prenatal testing and stories of Families who are either choosing to have or choosing to abort their Child with Down Syndrome. I have decided not to include those stories here. If you are reading this, then you likely have a Family Member with Down Syndrome so it doesn’t matter. Let’s focus on the positive here. Let’s share stories of what our Family Members can do. Let’s focus on ways to help them and Our Families live better and be happy.

What do you think? Please let me know in the comments section.

Thanks,

Sandra

Which leads me to this story…

Researchers Study Range of Glomerular Diseases in Down Syndrome

Thanks to medical advances, the life expectancy of individuals with Down syndrome has gone from 25 years in 1983 to 60 years today, according to the NDSS. This led a binational team of researchers from the U.S. and the United Arab Emirates to take an interest in other health complications in Down syndrome.

If you have found any great resources or stories, please share them in the Comments Section.