Down Syndrome – The News You Need This Week (1/31/12)

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Procedures To Use The Treadmill Training In Infants With Down Syndrome

Check out this Free Downloadable Treadmill Training Protocol from Noah’s Dad.

National Running Program Launched by Research Down Syndrome Foundation to Support Down Syndrome Cognitive Research

Building on successful marathon and other race events during 2011 in major cities, including New York City, Chicago and San Diego, RDS is expanding its running program to greatly increase its research funding, and has been accepted as a charity partner in multiple marathons across the country. Shorter fun races are being organized as well. “We are grateful for the enthusiastic support we received in events during 2011,” states Dr. Robert Schoen, RDS President, “Our goal is to support persons with Down syndrome by significantly increasing our fundraising in 2012.”

Adults With Down Syndrome Can Live Independently And Have A Satisfying Life

According to Craig Kendall, co-author of “How to Live, Love and Succeed with Down Syndrome” parents should develop a transition plan a year or so before their your loved one leaves school. Every person with Down syndrome is different, of course, so no two life courses will be the same. Kendall recommends that at least a year before a child is getting ready to leave school, the parents meet with school officials and try to develop a transition plan for them.

 Hanby’s inclusiveness provides an education

Now 14, Rogers’ daughter Ariel, who was born with Down syndrome, spends more than 80 percent of her day in mainstream classes with her peers at Hanby Middle School in Gold Hill.

Northridge’s Gabriel provides unlimited inspiration

 Allison Gabriel is an 18-year-old senior guard for the Lady Jaguars. She’s not the leading scorer or rebounder. She’s not the tallest or fastest player, and she doesn’t start. What she brings to the program is an inspirational attitude.

Dad with Down syndrome son: Don’t feel sorry

Smith wants to de-stigmatize Down syndrome in his blog, NoahsDad.com.

I started off today’s post with one from Noah’s Dad and I want to close with this interview with him. Rick is an amazing inspiration for all of us with Special Needs Family Members.

If you have found any great resources or stories, please share them in the Comments Section.

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Cerebral Palsy – The News You Need This Week

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Cerebral palsy boy’s silence broken thanks to ‘Hawking’ talker

Great story!

Young Joshua Lindley has begun a modelling career after a speaking machine helped him find his voice.

Was it right to ban this boy’s assistance dog from school?

Interesting commentary about this Story: Cerebral Palsy Boy’s Assistance Dog Banned From School

In a word – No. Just my opinion.

Genetic Abnormalities May Cause Cerebral Palsy

For years it was thought that a difficult birth and other perinatal factors were the leading causes of cerebral palsy (CP), a group of disorders that can involve brain and nervous system functions such as movement, learning, hearing, seeing and thinking. Now, researchers at Geisinger Health System find that the majority of cerebral palsy causes may in fact be caused by genetic abnormalities.

If you have found any great resources or stories, please share them in the Comments Section.

Help make The Village Your Village but sharing your thoughts, ideas and suggestions in this short survey. It’ll only take a few minutes but I appreciate your time very much.

For Families and Caregivers – The News You Need This Week (1/25/12)

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Last week I shared the story of Amelia Rivera and her family’s struggle to get her a kidney transplant. Here are two more articles that share some of what is happening as a result of the outcry from the Special Needs Community.

Amelia Rivera and Medical Morality

Bill Targets Bias in Transplant Decisions

 

Parents now ‘less tolerant of disabled children in same class’

 MORE than one in five people say they would object if a pupil with an intellectual disability or autism was in the same class as their child.

The disturbing statistic marks a growing level of intolerance of these children in the education system.

Just one in 12 said they would object when a similar study was carried out in 2006.

While this story is from Ireland it makes me wonder if the attitude is prevalent world-wide. We see so much in the media these days about tolerance. And we see so much about bullying and abuse. The moral of the story? Keep on working for awareness, acceptance and inclusion. And not because it is forced upon people, but rather because they truly want to.

Which leads me to…

The power of empathy: Peer groups help veterans, police and moms of kids with special needs

The programs, offered by the University of Medicine and Dentistry of New Jersey, are proving that empathy, which arises from walking in the shoes of another, creates a powerful connection and support for those in crisis.

 Special thank you to Doreen Fulton of IEP for Mom and Believe in a Ray of Hope for sharing this article.

Some suggestions for IEP goals when your child is bullied

Wish I had this wonderful list back when Matthew was bullied. Gregory Branch shares some excellent ideas to explore with your IEP Team in this article.

As we all know by now, special needs children are bullied 2 to 3 times more frequently than their typical peers. As I have mentioned in previous articles, one of the first steps that the parent of a special needs child should take is to request an IEP meeting.

Help for fragile X victims

The Murdoch Children’s Research Institute breakthrough could allow newborn screening of the world’s most common cause of inherited developmental disability.

Top Ten Most Ridiculous Comments Heard at an IEP Meeting

This article from Special Needs Advocate Denise Golberg is so important because many parents don’t realized that these statements are not only ridiculous but flat out wrong.

I have also, at times, heard some of the most outrageous statements!!! These ridiculous comments fly in the face of everything the Individuals with Disabilities Education Act (IDEA) stands for. What you will find below are ten of most ridiculous statements that I have heard and why they are so ridiculous.

Tips for helping your child with special education needs with their homework

For all parents helping their children with homework everyday takes time and effort. However, for parents of children with special education needs often this can turn into a long and challenging process. Some key tips to support children with special education needs in completing their homework include:

Tiger Mother to an Autistic Son

I’m including this article today, rather than in the ASD/PDD digest because it applies to Moms of all Special Needs Kids.

I’m tired of being called brave. But being the mom of a deeply autistic young man of 22, I can’t avoid it. Because I survived.

Interpreting the signs

This is an article from one of my local newspapers but I am sharing it because it is on a topic I don’t cover often – Deaf and Hard of Hearing issues. But even more important is this message:

Through my experience, research, and talking with teachers, audiologists, and therapists, I have learned the No. 1 factor that determines a child’s success: family involvement.

 

John Corbett Stars in “A Smile as Big as the Moon,” New Hallmark Hall of Fame Movie Airing Sunday, January 29 on ABC

The inspiring story of a high school football coach and special-education teacher who worked to achieve an impossible dream — to take a class of special-education students to NASA’s Space Camp

If you have found any great resources or stories, please share them in the Comments Section.

Help make The Village Your Village but sharing your thoughts, ideas and suggestions in this short survey. It’ll only take a few minutes but I appreciate your time very much.