Cerebral Palsy – The News You Need This Week (3/26/12)

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School Bans Child with Cerebral Palsy from Using Her Walker

This is such an important story. It’s absolutely unconscionable that a mother, that any parent or guardian for that matter, be treated in the manner that this mother was. Whether you agree or disagree with the school’s decision, there is still absolutely no cause for this kind of treatment. To tell a mother that they are not concerned about their child is be on my comprehension. If the school truly feels that this is a matter for the court, that’s fine. However, this mother deserves to be treated with respect and her child deserves to be treated with dignity.

That being said, watch this video if for no other reason than to celebrate McKay’s first steps.

Laurence Clark: the ‘sit-down’ comic fighting for the right to the good life

 A positive attitude, yes. But an important message.

But it is not only as a comedian that Clark is seeking to challenge our notion of what disabled people can or can’t do. He and his wife Adele, 34, who also has cerebral palsy, are parents to two able-bodied sons: Tom, eight, and nine-month-old Jamie. As a couple, they refuse to be defined by their impairment in a society that is still shockingly unused to seeing disabled parents intent on pursuing independent lives.

Even cerebral palsy can’t stop this dedicated video creator

Kudos to Endgadget for showing this side of technology.

Click on through for a nice heart-warming tale about the power of modern technology.

Please let us know your thoughts or questions on these articles in the Comments Section or privately via the Contact Page.

 

Information on new health care bill

Note: Becky Willis asked me to pass this information to our Village. Following is the email I received from her. If anyone else has any information or ideas on this, please post a comment. Thanks! ~Sandy

As you know, I have a son with autism and this health care bill scares me.  I listened to the interview with Fred Thomsonand there is much more than just page 425.  We must contact our congress.  Becky

Page 425 of HealthCare BILL

O.K.  folks – I ‘think’ this will ‘shake us up’ – read and listen to this Interview – “IF” this does not cause every red-blooded American to contact their Representatives, I don’t know what will!!  It’s time for ACTION!  Americans!!
Both Democrats and Republicans beware.

(If this doesn’t make your blood boil…. nothing will!!)

Page 425 of Health Care Bill – Listen to this interview Fred Thompson’s Radio Show interviewing Betsy McCaughey (pronounced Mc Coy).

Fred Thompson: Interviews

On page 425 it says in black and white that EVERYONE on Social Security, (This includes all Senior Citizens and those on SSI) will go to MANDATORY counseling every 5 years to learn and to choose from ways to end your suffering (and your life).  Health care will be denied based on age.  500 Billion will be cut from Seniors healthcare.  The only way for that to happen is to drastically cut health care, the oldest and the sickest will be cut first.  Paying for your own care will not be an option.

Now, CALL YOUR REPS IN WASHINGTON!!!!!
Tell them to read page 425 if they don’t read anything else.
Surely some of them have parents.

“ON PAGE 425 OF OBAMA’S HEALTH CARE BILL, the Federal Government will require EVERYONE who is on Social Security to undergo a counseling session every 5 years with the objective being that they will explain to them just how to end their own life earlier.  Yes…They are going to push SUICIDE to cut medicare spending!”

Fred Thompson: Interviews

(BE SURE TO CLICK ON THE ABOVE LINK!)

End Autism Insurance Descrimination

Yesterday, a little after 5:00 pm, Matthew had his 4th Grand Mal Seizure. Apparently this is not uncommon in Autistic Teens but that doesn’t make it less scary. If you have never witnessed someone having a Grand Mal, there is no way I can describe it. Even as I watched him and I knew it would end and he would be fine, there was a part of me that just knew I was going to lose him right there. It is a terrifying experience even when you know what to expect and what to do.

This morning, as I was going through my Google Reader I saw this post on Age of Autism about Autism Insurance Discrimination. It is a call to action from Elizabeth Emken, the Vice President of Government Relations for Autism Speaks to contact House Speaker Pelosi and Senate Majority Leader Reid to urge them to end Autism Insurance Discrimination.

When Matthew had his seizure yesterday, it was by far the worst one and he had some “mini” seizures right after. It was also clear that he had hit his head on the bathroom sink. Matthew has an extremely high pain threshold, something has to hurt really bad for him to say anything. So the Paramedics didn’t trust that he was ok when he said nothing hurt and put him in a collar and on a board as a precaution. Thank God we have insurance for him through his Father and I knew there was help when we needed it.

It was a terrifying experience but Matthew is fine this morning. My nerves are shot but he’s fine! I can’t imagine what would have happened if I had to stop and say, “I can’t get him help, I don’t have insurance.” He hit that sink hard, I heard it from downstairs. He hit his forehead hard enough to have a small cut over his eye and a lump on his forehead. He could have been seriously hurt (I’m trying not to think of Jett Travolta but two of Matthew’s seizures have been in the bathroom).

Whether your Special Needs Family Member is Autistic or not, I ask you to please consider Autism Speaks call to action and help us make sure everyone has access to health insurance when they need it.

And please comment and let us know what you think!

Thanks,

Sandy and Matthew

Villagers