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Most of the news this past week and for a while, actually, has centered around prenatal testing and stories of Families who are either choosing to have or choosing to abort their Child with Down Syndrome. I have decided not to include those stories here. If you are reading this, then you likely have a Family Member with Down Syndrome so it doesn’t matter. Let’s focus on the positive here. Let’s share stories of what our Family Members can do. Let’s focus on ways to help them and Our Families live better and be happy.

What do you think? Please let me know in the comments section.

Thanks,

Sandra

Which leads me to this story…

Researchers Study Range of Glomerular Diseases in Down Syndrome

Thanks to medical advances, the life expectancy of individuals with Down syndrome has gone from 25 years in 1983 to 60 years today, according to the NDSS. This led a binational team of researchers from the U.S. and the United Arab Emirates to take an interest in other health complications in Down syndrome.

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Funding For Down Syndrome Research Shrinks

The organizations pointed out that research into Down syndrome has benefits beyond those currently affected by the disorder since individuals with Down syndrome are at higher risk for Alzheimer’s disease, childhood leukemia and other conditions.

Why is Down Syndrome Linked to Leukemia?

The chromosome 21 gene the researchers have zeroed in on — Dyrk1A — may also be the answer to treating this type of leukemia, according to an announcement of the findings, by developing a small-molecule inhibitor of that particular gene.

Kay McGee, 91, Founded Down Syndrome organization

I am so grateful for her vision. The world would be a sadder place if she had followed the conventional wisdom of the time.

But Kay McGee’s work helped people with other disabilities as well, according to Hebein. It raised the issue of inequality and offered parents hope at a time when they got mostly negative information.

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