For Families and Caregivers – The News You Need This Week (3/28/12)

For previous articles, please click here.

If you find the information, resources and support here on Our Special Families Village Helpful, please consider supporting our efforts when you shop your favorite online retailers through iBakeSale.com. Thank you.

 

Home Health Providers: Finding the Right Fit

No matter what the caregiver’s credentials, however, be prepared to spend some initial time training and teaching. After all, no one knows your child like you do. No one else is as informed about your child’s needs as you are, or has your experience caring for your child.

 How Merrill Lynch Helps Special Needs Families

For more on Special Needs Planning, please see my interview with Doug Baker.

To aid families through the initial process of starting a Special Needs Trust, Merrill recently launched a Special Needs Calculator, which helps parents project how much they will need, at retirement, to provide for their child, based on certain financial information and the child’s projected life expectancy. The calculator can take into account expenses such as a child’s monthly health care, housing, special education and transportation expenses, as well as his or her projected employment income, and state or federal government benefits.

The Financial Needs of Children with Autism

This applies to all Special Needs Children.

The city water facility was able to inform him that there could be a medical flag put onto the account, so long as a doctor signed a form.It doesn’t mean that the bill doesn’t get paid (as the money would still be due) – it just means that the city would take an extra step and work with you further before any action on turning the water off would be taken.

 Effective IEP Teams: Reality or Impossible Dream?

I wish I had this information when Matthew was little! For more help with IEP’s and Special Education, visit Special Education Advisor.

What happens at IEP meetings when staff and parents come together to develop an effective plan for a child with disabilities? It is basically the same set of people. What is different about an effective team?

Game-changing technology offers everyone hope

Technology – giving voice when there was only silence.

…But I’m waiting for this day. I’m waiting with all of the bad and good that can come with self-expression – even hopeful for it. I’m hopeful within my family’s world. And, I’m even hopeful for our great, wide world, too.

Explaining Death

A few years ago, a friend of Matthew’s died suddenly. He was the person who taught my Son with Autism how to have a friend. We had no warning; no time to prepare Matthew. To this day, I don’t think Matthew understands what happened. All I could do was to try to make sure that Matthew didn’t think his friend just didn’t like him anymore.

I know this will be difficult, but death and funerals are a part of life and living. I think the more the children are included in big family events and shown how to care, share, and show respect, the better they will be prepared for life. That does not mean that I cannot do a little preparation.

Generation Next Question

I thought that those of you with Special Needs Young Adults might appreciate this…

Some of those things that I should be familiar with as a parent of a typical 17-year-old may well slap me in the face as my son starts to integrate with his neurotypical peers. Or maybe it will be reality that slaps me in the face if Cameron struggles mightily in the general population setting. We’ll never know unless we try. Either that, or I’ve got to really find that crystal ball.

Please let us know your thoughts or questions on these articles in the Comments Section or privately via the Contact Page.

Down Syndrome – The News You Need This Week (3/27/12)

For Previous Articles Please Click Here.

If you find the information, resources and support here on Our Special Families Village Helpful, please consider supporting our efforts when you shop your favorite online retailers through iBakeSale.com.

 

Artist born with Down Syndrome exhibits her work at Osceola32

Katie Henderson’s drawings have been compared to Pablo Picasso’s cubist work because of her broken-up and abstract female figures.

Why A Boy With Down Syndrome Is Barred From Playing High School Basketball

Bravo to Forbes.com for this story.

…Also, as it turns out, a story less about a a disabled student who is being held back by an evil, soulless, faceless, faraway athletic association far away because it insists on enforcing a rule beyond the bounds of common sense, and more about a disabled student who is being held back by the members of that organization, who can’t figure out a way to create an exception that, they fear, won’t end up leading other schools to figure out a way to carve an exception for a star athlete, rather than for a feel-good story (though when you look at this video, Dompierre is not merely a mascot — he can shoot).

World Down Syndrome Day in Italy

UN World Down Syndrome Day – Italian Stlye – you gotta check this out!

CoorDown, the National Association for people with Down Syndrome, and Saatchi & Saatchi Italy have joined forces for a communication project to promote better integration of people with Down Syndrome into society. On March 21st, UN World Down Syndrome Day (WDSD), alternative versions of well known national and international TV and print campaigns feature actors with Down Syndrome in place of the original actors and models.

Please let us know your thoughts or questions on these articles in the Comments Section or privately via the Contact Page.

 

Cerebral Palsy – The News You Need This Week (3/26/12)

For Previous Articles, Please Click Here.

Help us help you – Support our efforts when you shop your favorite online retailers through iBakeSale.com. Thank you.

 

School Bans Child with Cerebral Palsy from Using Her Walker

This is such an important story. It’s absolutely unconscionable that a mother, that any parent or guardian for that matter, be treated in the manner that this mother was. Whether you agree or disagree with the school’s decision, there is still absolutely no cause for this kind of treatment. To tell a mother that they are not concerned about their child is be on my comprehension. If the school truly feels that this is a matter for the court, that’s fine. However, this mother deserves to be treated with respect and her child deserves to be treated with dignity.

That being said, watch this video if for no other reason than to celebrate McKay’s first steps.

Laurence Clark: the ‘sit-down’ comic fighting for the right to the good life

 A positive attitude, yes. But an important message.

But it is not only as a comedian that Clark is seeking to challenge our notion of what disabled people can or can’t do. He and his wife Adele, 34, who also has cerebral palsy, are parents to two able-bodied sons: Tom, eight, and nine-month-old Jamie. As a couple, they refuse to be defined by their impairment in a society that is still shockingly unused to seeing disabled parents intent on pursuing independent lives.

Even cerebral palsy can’t stop this dedicated video creator

Kudos to Endgadget for showing this side of technology.

Click on through for a nice heart-warming tale about the power of modern technology.

Please let us know your thoughts or questions on these articles in the Comments Section or privately via the Contact Page.