Resource Guide

Ability Path

From their website:

AbilityPath.org is an online hub and special needs community for parents and professionals to learn, connect and live a more balanced life – through all phases of a child’s growth and development. The website combines social networking features with expert content from AbilityPath.org’s team of educators, parents, therapists and medical professionals.

American Association of People with Disabilities 

From their website:

The American Association of People with Disabilities (AAPD), the country’s largest cross-disability membership organization, organizes the disability community to be a powerful voice for change – politically, economically, and socially. AAPD was founded in 1995 to help unite the diverse community of people with disabilities, including their family, friends and supporters, and to be a national voice for change in implementing the goals of the Americans with Disabilities Act (ADA).

The Childhood Apraxia of Speech Association of North America (CASANA)

From their website:

The mission: To strengthen the support systems in the lives of children with apraxia, so that each child has their best opportunity to develop speech

Autism Online – Connecting Community and Resources

From their website:

Our mission to provide products for all individual affected by ASD—including individuals with ASD themselves, caregivers, advocates, teachers, and professionals—makes AutismOnline a unique and extensive resource for the autism community.

Children with Special Needs

About.com site with great information and resources

Deaf Autism America

From their Website:

Deaf Autism America aims to increase mutual support, understanding, learning and collaboration among families and professionals in order to enhance the quality of life for Deaf and hard of hearing children with autism. The goal of DAA is to improve education, networking, resources and advocacy services for this special population.

Disability Scoop

From their website:

Founded in 2008, Disability Scoop is the nation’s premier source for developmental disability news. With daily coverage of autism, intellectual disability, cerebral palsy, Down syndrome and more, no other news source offers a more timely and comprehensive take on the issues that matter to the developmental disability community.

Down Syndrome Education Online

From their website:

Down Syndrome Education Online offers a comprehensive, reliable and up-to-date range of information, resources and services for families, practitioners and researchers caring for, supporting and investigating Down syndrome.

Epilepsy Foundation

From their website:

The Epilepsy Foundation of America® is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure.

Family Connect Online – for Parents of Children with Visual Impairments

From Their Website:

FamilyConnect is an online, multimedia community created by the American Foundation for the Blind (AFB) and the National Association for Parents of Children with Visual Impairments (NAPVI). This site gives parents of visually impaired children a place to support each other, share stories and concerns, and link to local resources. The site also features a mom-authored blog, inspiring video testimonials from families, and articles authored by parents and experts in the field of blindness on multiple disabilities, technology, education, and more. From the personal to the professional, families will find all the resources they need to raise their children from birth to adulthood.

Global Hydranencephaly Foundation

From their website:

Through the Global Hydranencephaly Foundation, a greater passion will be shared as families are networked across the globe to ensure every child given this diagnosis has the opportunity to live and thrive in the quality of life they deserve. Families will be offered support, information, guidance and resources. Through education and awareness campaigns, the medical community will become enlightened to the possibilities that exist for these children and the world will learn to accept this condition as simply an obstacle in the lives of these little miracles.

MD Junction 

From their Website:

MDJunction is an active center for Online Support Groups, a place where thousands meet every day to discuss their feelings, questions and hopes with like minded friends.

Mommies of Miracles

From their website:

Mommies of Miracles a truly supportive, compassionate, sensitive, and uplifting environment. We all experience so much negativity in our lives each and every day; here at Mommies of Miracles we feel like we have created a safe place away from the harshness of our reality to lend each other some advice, cry together, and laugh at the craziness of our lives.

While we are some of the fiercest advocates for our children, we have an unspoken policy to refrain from reposting or debating many of the negative media stories that constantly bombard the special needs community. Mommies of Miracles exists to make you feel a little better about your life while enduring extreme parenting circumstances, to keep you connected with others and resources, and to offer hope.

Project Julia’s World

From their Website:

Helping families and children living with Deafness, Autism or other challenges open avenues to communication, language, learning and living through visual and written communication strategies, connections, and life experiences.

ProviderSearch Directory

From their website:

ProviderSearch.com is a web-based tool designed to help families and professionals make meaningful connections. This site was developed with one main goal in mind – to assist families in their search for quality professionals who can help work with and enhance the lives of their loved ones with special needs.

Sensory Processing Disorder Foundation

From their website:

The Sensory Processing Disorder Foundation … expanding knowledge, fostering awareness and promoting recognition of Sensory Processing Disorder

Special Olympics

From their website:

The mission of Special Olympics is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendship with their families, other Special Olympics athletes and the community.

TA & D Network Technical Assistance and Dissemination Network

From their website:

The Technical Assistance and Dissemination Network (or “TA&D Network”) is a network of approximately 45 Centers (this fluctuates as old projects end or new ones begin) funded by the Office of Special Education Programs (OSEP). These projects provide information and technical assistance to states, schools, educational professionals and families, on topics such as autism, deafness, disproportional representation, dispute resolution, learning disabilities, parenting children with special needs, positive behavior support and transition.

TASH

From their website:

TASH is an international leader in disability advocacy. Founded in 1975, TASH advocates for human rights and inclusion for people with significant disabilities and support needs – those most vulnerable to segregation, abuse, neglect and institutionalization. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families and self-advocates. The inclusive practices TASH validates through research have been shown to improve outcomes for all people.

 Wrightslaw Yellow Pages for Kids

From their Website:

Find educational consultants, psychologists, educational diagnosticians, health care providers, academic therapists, tutors, speech language therapists, occupational therapists, coaches, advocates, and attorneys for children with disabilities on the Yellow Pages for Kids for your state.

You will also find special education schools, learning centers, treatment programs, parent groups, respite care, community centers, grassroots organizations, and government programs for children with disabilities.