What I Think

Why I participated in yesterday’s Internet Blackout Day.

Yesterday, January 18, Our Special Families Village and my other site ePro Virtual Assistance joined thousands of other websites, from small, personal blogs to Google, in a virtual protest of proposed legislation SOPA and PIPA. These bills are intended to stop piracy.

One of my goals here on Our Special Families Village is to sort through the literally thousands of articles relating to Special Needs each day and bring you valuable information and resources. I would never plagiarize in any way. I always give you the link to the original article so you can read further if you wish. This helps you, it helps me and it helps the sites I link to. Under the terms of SOPA and PIPA, this would be technically illegal. Our Special Families Village could be blacked out without warning. No questions asked. I would be denied my right to bring this information to you and you would be denied your right to read it. In a word, Our Village would be censored.

I urge you to educate yourselves about this dangerous legislation and contact your Congressional Representatives and Senators to voice your opinion.

Google's Doodle on Internet Blackout Day

Google's Doodle on Internet Blackout Day

Here are some excellent articles and resources:

Google – End Piracy, Not Literacy

Mashable – Don’t Censor the Web

This is the Internet After SOPA

We Need to Talk about Piracy (But We Must Stop SOPA)

Obama Says So Long SOPA, Killing Controversial Internet Piracy Legislation

Fight for the Future

Stop American Censorship

And my personal favorite - The Oatmeal

Keep in mind that under SOPA and PIPA, providing you with these links would put me at risk of having Our Special Families Village shut down. Without warning. Without Due Process. Shoot first and maybe ask questions later.

And while it looks like the legislation as it stands will be defeated (Obama says he’ll veto it if it gets to him) that does not mean that it will go away. It will come back. Reworked, rewritten, cloaked. And we must continue to work toward a fair and reasonable solution so everyone is allowed their voice.

SOPA is not anti-piracy. It is censorship. And it is wrong.

When Someone Else Plays God – For all the Amelias in our World

As I sort through the latest news and resources this week I keep running into the story of Amelia, a lovely little girl who needs a kidney transplant. Everywhere I turn there is Amelia and her Mom.

Their story. Their Family. Their Love.

And someone else in control.

Someone else deciding the value of Amelia’s life.

Someone else who isn’t her Family.

Someone else playing the role of King Solomon.

I don’t know the right thing to do here, not because she is not my Child and not my Patient but rather because I don’t believe there is an ultimate, definitive right answer.

That being said, the situation raises some very important issues. Ones I think need to be carefully reviewed, thought about, and discussed. Here are a few of the articles that I feel present as many sides of the situation as possible. I encourage you to read them. Think about them. Talk about them.

Brick Walls – written by Amelia’s Mom

Kidney Transplant Dispute

Occupy CHOP for Amelia

Who Deserves a Kidney Transplant?

Denying A Transplant To A ‘Retarded’ Child?

It is very important to look at all sides in this situation because it is about more than Amelia. It is about other people, other Families, too.

At the end of the day however, there will be no clarity. No right answer. No correct policy or law. We will never know if the right decision was made. That makes this conversation even more important.