Food For Thought

When Someone Else Plays God – For all the Amelias in our World

As I sort through the latest news and resources this week I keep running into the story of Amelia, a lovely little girl who needs a kidney transplant. Everywhere I turn there is Amelia and her Mom.

Their story. Their Family. Their Love.

And someone else in control.

Someone else deciding the value of Amelia’s life.

Someone else who isn’t her Family.

Someone else playing the role of King Solomon.

I don’t know the right thing to do here, not because she is not my Child and not my Patient but rather because I don’t believe there is an ultimate, definitive right answer.

That being said, the situation raises some very important issues. Ones I think need to be carefully reviewed, thought about, and discussed. Here are a few of the articles that I feel present as many sides of the situation as possible. I encourage you to read them. Think about them. Talk about them.

Brick Walls – written by Amelia’s Mom

Kidney Transplant Dispute

Occupy CHOP for Amelia

Who Deserves a Kidney Transplant?

Denying A Transplant To A ‘Retarded’ Child?

It is very important to look at all sides in this situation because it is about more than Amelia. It is about other people, other Families, too.

At the end of the day however, there will be no clarity. No right answer. No correct policy or law. We will never know if the right decision was made. That makes this conversation even more important.

 

Concerns Linger As New Down Syndrome Test Hits Market – Disability Scoop

Another issue that’s not so black and white.  I think the perspective from those with Down Syndrome is interesting. I do believe that without my friends who have Down Syndrome I would lose something precious and special.

Concerns Linger As New Down Syndrome Test Hits Market – Disability Scoop.

What do you think?

Black and White Issues in a Colorful World

I’ve been ruminating on a few news items lately and reading the debates over pros and cons of these issues. I’d like to share my thoughts, not on the issues themselves but rather on my thoughts about the actual discussion process. 

First, let me give a little info on the two main issues that drove me to my keyboard.

One is Congresses intent to review the Subminimum Wage law that allows companies to hire workers with disabilities and pay them less than minimum wage. As the parent of a Developmentally Disabled child preparing to enter the work force I can honestly argue for and against subminimum wages. The other issue is the Dream Act that will allow illegal immigrants in California to apply for state funded financial aid. Honestly, it’s a bit difficult to see the merits here. I have watched services for Matthew cut several times in the past few years due to budget cuts. It’s a bit tough for me to see how it is fair for people who don’t pay taxes, who don’t “play by the rules”, to receive financial breaks on a college education. I pay my taxes. I play by the rules. And Matthew gets less.

Exploring these issues has made it even more clear to me than it already was…

There are some pretty passionate people on both sides of these two issues. They often voice their opinions in a “my way or the highway” attitude. Don’t get me wrong, I’m not judging their opinions or their right to voice them. Indeed I believe our First Amendment is very precious.

But here is my concern…

We all come to the table with our own set of values and experiences. When we format our opinions only from those perspectives then we might be closing our minds to opinions and ideas from others. We might be closing ourselves off to people who have different values and experiences that are no less valid than our own.

This can lead us into thinking in terms of black and white. If we open our minds to truly listen to what others have to say, we might find out that they have some interesting points of view. We might find out that when we all come to the table and truly listen to each other, openly, honestly and without blame, that we aren’t so far apart. And that we can work together. For everyone’s benefit.

We might find a world of glorious colors.

Pretty scary, huh?

 

So what do you think? Please add your comments in the form below.