Parenting Information and Resources

For Families and Caregivers – The News You Need This Week (2/1/12)

For previous articles, please click here.

Loud and Clear: A Special Needs Conversation

Although Medicaid is available only to those having limited income and assets, once an individual with disabilities reaches the age of 18, family assets are no longer considered, making it an important consideration in all special needs estate planning.

Special Needs Resource Magazine – Special Educators Toolkit

Share this with your child’s teachers!

Cindy Golden, a seasoned special educator, administrator, and psychologist with almost 30 years of experience, has based this teacher-friendly toolkit on her popular OMAC (Organization and Management of All Classrooms) system an innovative approach to creating effective classrooms for students with all types of disabilities. Special educators will get step-by-step, ready-to-use guidance on managing six key aspects of their daily work:

The Special Needs Future is now! 11 Tips to make sure you are prepared

But how do you, as young parents already overwhelmed by care-giving, begin such a task? Start by educating yourself while the kids are still young…

Children with Reading Problems? Perhaps it’s Irlen Syndrome

Finally, Jennifer’s parents, who were determined to help their daughter, discovered something called Irlen Syndrome, a visual processing disorder. They looked it up on the Internet and found a testing center near their home. They wanted to see if perhaps Jennifer had this “little known” disorder that they later found affects as many as 18% of the population. Sure enough she had Irlen Syndrome.

From Project Julia’s World – What Is A Deaf Child’s Bill of Rights?

 Eleven states in the U.S. have already passed a Deaf Child Bill of Rights to ensure the choice of communication mode of deaf/hard of hearing children is respected and to ensure these children have fully accessible educational opportunities through an IEP focused on language and communication needs.

Early Intervention for Children under Three through IDEA Part C

Did you know that eligible children under age three can get special education support? They can, through the Early Intervention Program of Part C of the Individuals with Disabilities Education Act (IDEA)!

How to Bully-Proof Your Child with attorney and author Greg Branch.

Listen to internet radio with The Happy Hour Gals on Blog Talk Radio

If you have found any great resources or stories, please share them in the Comments Section.

Help make The Village Your Village but sharing your thoughts, ideas and suggestions in this short survey. It’ll only take a few minutes but I appreciate your time very much.

 

 

For Families and Caregivers – The News You Need This Week (1/25/12)

For previous articles, please click here.

To read comments or to leave a comment, please click on the Comments link in the upper right.

Last week I shared the story of Amelia Rivera and her family’s struggle to get her a kidney transplant. Here are two more articles that share some of what is happening as a result of the outcry from the Special Needs Community.

Amelia Rivera and Medical Morality

Bill Targets Bias in Transplant Decisions

 

Parents now ‘less tolerant of disabled children in same class’

 MORE than one in five people say they would object if a pupil with an intellectual disability or autism was in the same class as their child.

The disturbing statistic marks a growing level of intolerance of these children in the education system.

Just one in 12 said they would object when a similar study was carried out in 2006.

While this story is from Ireland it makes me wonder if the attitude is prevalent world-wide. We see so much in the media these days about tolerance. And we see so much about bullying and abuse. The moral of the story? Keep on working for awareness, acceptance and inclusion. And not because it is forced upon people, but rather because they truly want to.

Which leads me to…

The power of empathy: Peer groups help veterans, police and moms of kids with special needs

The programs, offered by the University of Medicine and Dentistry of New Jersey, are proving that empathy, which arises from walking in the shoes of another, creates a powerful connection and support for those in crisis.

 Special thank you to Doreen Fulton of IEP for Mom and Believe in a Ray of Hope for sharing this article.

Some suggestions for IEP goals when your child is bullied

Wish I had this wonderful list back when Matthew was bullied. Gregory Branch shares some excellent ideas to explore with your IEP Team in this article.

As we all know by now, special needs children are bullied 2 to 3 times more frequently than their typical peers. As I have mentioned in previous articles, one of the first steps that the parent of a special needs child should take is to request an IEP meeting.

Help for fragile X victims

The Murdoch Children’s Research Institute breakthrough could allow newborn screening of the world’s most common cause of inherited developmental disability.

Top Ten Most Ridiculous Comments Heard at an IEP Meeting

This article from Special Needs Advocate Denise Golberg is so important because many parents don’t realized that these statements are not only ridiculous but flat out wrong.

I have also, at times, heard some of the most outrageous statements!!! These ridiculous comments fly in the face of everything the Individuals with Disabilities Education Act (IDEA) stands for. What you will find below are ten of most ridiculous statements that I have heard and why they are so ridiculous.

Tips for helping your child with special education needs with their homework

For all parents helping their children with homework everyday takes time and effort. However, for parents of children with special education needs often this can turn into a long and challenging process. Some key tips to support children with special education needs in completing their homework include:

Tiger Mother to an Autistic Son

I’m including this article today, rather than in the ASD/PDD digest because it applies to Moms of all Special Needs Kids.

I’m tired of being called brave. But being the mom of a deeply autistic young man of 22, I can’t avoid it. Because I survived.

Interpreting the signs

This is an article from one of my local newspapers but I am sharing it because it is on a topic I don’t cover often – Deaf and Hard of Hearing issues. But even more important is this message:

Through my experience, research, and talking with teachers, audiologists, and therapists, I have learned the No. 1 factor that determines a child’s success: family involvement.

 

John Corbett Stars in “A Smile as Big as the Moon,” New Hallmark Hall of Fame Movie Airing Sunday, January 29 on ABC

The inspiring story of a high school football coach and special-education teacher who worked to achieve an impossible dream — to take a class of special-education students to NASA’s Space Camp

If you have found any great resources or stories, please share them in the Comments Section.

Help make The Village Your Village but sharing your thoughts, ideas and suggestions in this short survey. It’ll only take a few minutes but I appreciate your time very much.

 

 

Self-Care for Mom – An Interview with Doreen Fulton of IEP for Mom

Today’s interview is with Doreen Fulton, creator of the Finally, an IEP for Mom Experience! program designed to help Moms develop their own Individualized Empowerment Plan.

Doreen and I talked about how Moms can take care of themselves and their Families and why that is important for every ones sake.

She shared:

  • How you can help yourself and your child at the same time;
  • Simple strategies you can use to bounce back when you are down for the count
  • What you can do today to sleep easier tonight and wake up refreshed and ready to tackle the day ahead!

Watch the interview here:

Or if you prefer audio only:

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About Doreen:

Doreen coaches Moms and Educators and specializes in giving voice to Young Adults with Special Needs. She is passionate about giving voice to unspoken dreams and empowering Moms and Educators like you to think and act in new ways that give you stamina, strength and resilience, so that you can be the role models that you wish to be. She knows from personal experience how isolated, forgotten and unheard you can feel while advocating for you Special Needs Familiy Member.

Learn more about Doreen and those who want to support you here:

Connect with Doreen on Facebook here.Doreen Fulton - IEP for Mom

IEP for Mom - Discover How to Successfully Navigate Through the Desert of Special Needs into an Oasis of Hope and Support!

To connect with Doreen and learn more about her individual or group coaching programs, visit Believe in a Ray of Hope and get her free special report: “5 Keys to the Garden of Hope, Happiness and Empowerment for the Mom who is Overworked, Overwhelmed and Underappreciated!”

Click here to find more Interviews.

Do you know someone I should interview? Please let me know via our Contact page. Thanks!

Enjoy,

Sandra

Matthew at the Park

What I learned from Doreen - Listen to find out what it is!