Down Syndrome

Down Syndrome – The News You Need This Week (4/17/12)

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Mother’s Day is just around the corner! If you find the information, resources and support here on Our Special Families Village Helpful, please consider supporting our efforts when you shop your favorite online retailers through iBakeSale.com.

Angels give Down syndrome man a chance

There is a place for everyone. Everyone has their own gifts and their own genius. And we all deserve a chance to shine.

Albert Pujols. Pu-jols! Pu-jols! He’s the best,” he said enthusiastically, knowing the Angels slugger has a 14-year-old daughter, Bella, with Down Syndrome.

Hendershot makes the connection proudly. He wants to show that his condition doesn’t keep him hidden at home or unable to do a public job well.

Facebook acts to take down vile trolling abuse of girl with Down’s Syndrome after Parentdish steps in

Bravo Parentdish and Facebook!

A Facebook spokesman told Parentdish.co.uk: “These images can and will be removed by Facebook; Liz Crowter would need to use this link to report unauthorised photos.

“Once the images are reported, they will be reviewed by our User Operations team – who are responsible for reviewing incoming reports and taking the necessary action.

“Across much of the wider web there are few controls on behaviour and the content that individuals can post. That isn’t the case on Facebook. Facebook has a real identity policy, which makes people accountable for their actions and behaviour.

“When people on Facebook do find themselves in a situation where they feel uncomfortable, we encourage them to use our reporting tools so the content or activity can be investigated.

“We also have a set of rules that set out how people are expected to behave – the Statement of Rights and Responsibilities. These rules are intended to create a balance between enabling free speech and preventing harassment and abuse.”

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Down Syndrome – The News You Need This Week (4/3/12)

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Baby Developmental Milestone: Noah Sits Up By Himself!

 I love Noah’s Family’s Celebrate, don’t compare philosophy!

Our neighbors must think we’re crazy because of all the loud screaming that comes from our house. I’m sure anyone walking by our house can hear it. It’s loud. Why so much noise you ask? Well, because we celebrate like crazy around here! It doesn’t matter how big or small(no accomplishment is a small accomplishment in my book) we celebrate every win in our house.

Take a few moments out of your day to watch this. But get the tissues first.

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Down Syndrome – The News You Need This Week (3/27/12)

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Artist born with Down Syndrome exhibits her work at Osceola32

Katie Henderson’s drawings have been compared to Pablo Picasso’s cubist work because of her broken-up and abstract female figures.

Why A Boy With Down Syndrome Is Barred From Playing High School Basketball

Bravo to Forbes.com for this story.

…Also, as it turns out, a story less about a a disabled student who is being held back by an evil, soulless, faceless, faraway athletic association far away because it insists on enforcing a rule beyond the bounds of common sense, and more about a disabled student who is being held back by the members of that organization, who can’t figure out a way to create an exception that, they fear, won’t end up leading other schools to figure out a way to carve an exception for a star athlete, rather than for a feel-good story (though when you look at this video, Dompierre is not merely a mascot — he can shoot).

World Down Syndrome Day in Italy

UN World Down Syndrome Day – Italian Stlye – you gotta check this out!

CoorDown, the National Association for people with Down Syndrome, and Saatchi & Saatchi Italy have joined forces for a communication project to promote better integration of people with Down Syndrome into society. On March 21st, UN World Down Syndrome Day (WDSD), alternative versions of well known national and international TV and print campaigns feature actors with Down Syndrome in place of the original actors and models.

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Down Syndrome – The News You Need This Week (3/20/12)

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Tomorrow, March 21st (3/21) is Down Syndrome Day!

Down Syndrome – The News You Need This Week (3/6/12)

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Most of the news this past week and for a while, actually, has centered around prenatal testing and stories of Families who are either choosing to have or choosing to abort their Child with Down Syndrome. I have decided not to include those stories here. If you are reading this, then you likely have a Family Member with Down Syndrome so it doesn’t matter. Let’s focus on the positive here. Let’s share stories of what our Family Members can do. Let’s focus on ways to help them and Our Families live better and be happy.

What do you think? Please let me know in the comments section.

Thanks,

Sandra

Which leads me to this story…

Researchers Study Range of Glomerular Diseases in Down Syndrome

Thanks to medical advances, the life expectancy of individuals with Down syndrome has gone from 25 years in 1983 to 60 years today, according to the NDSS. This led a binational team of researchers from the U.S. and the United Arab Emirates to take an interest in other health complications in Down syndrome.

If you have found any great resources or stories, please share them in the Comments Section.